patient-controlled-data
(2)
Patients Know Best wants your medical record to follow you
Eight million patients have registered with a company built around a stubborn idea: the person receiving care should control a copy of the record. Making that work means changing how hospitals buy software, share information and involve patients.
Novellia
Novellia is a New York-based digital health company that lets patients pull together their complete medical history from more than 50,000 U.S. healthcare systems into one free app, then choose whether to share de-identified versions of that data with drug companies and researchers. Using proprietary natural language processing, Novellia turns messy, unstructured clinical text - physician notes, lab narratives, diagnostic reports - into clean, research-ready longitudinal datasets. The result is a two-sided model: patients regain control of their records at no cost, while life sciences organizations get higher-quality, patient-consented real-world data than the fragmented claims-based datasets they buy today.