# Living in the Light

> Living in the Light is a Northampton, Massachusetts visual-storytelling and patient-advocacy company founded by photographer and filmmaker Levi Gershkowitz. It creates documentary films, portraits, written narratives, campaigns, installations, publications, and events for rare-disease communities and the biotech, medical, research, and advocacy organizations that work with them. Its defining move is simple but consequential: present a diagnosis as one part of a whole person and family, not as the subject's entire identity.

- **Founded:** 2012
- **Headquarters:** Northampton, United States
- **Founders:** Levi Gershkowitz (Founder and CEO)
- **Products:** Patient advocacy and narrative medicine, Fine-art photography and video, Digital and print campaigns, Installations and galleries, Special events and programming
- **Notable:** Interviewed and photographed more than 600 families living with more than 80 rare conditions worldwide, according to the company., Created The Tenacity of Hope with Cure CMD for presentation at a 2022 patient-focused drug-development meeting with the FDA., Had work featured across websites, magazines, galleries, permanent installations, conference environments, and Times Square billboards, according to the company.

## Products & services

- **Patient advocacy and narrative medicine** — Community-sensitive interviewing, story development, and relationship-building designed to help patient voices inform education, access, visibility, and treatment conversations.
- **Fine-art photography and video** — Original portraits, short-form video narratives, and full-length documentary films for rare-disease communities and healthcare partners.
- **Digital and print campaigns** — Disease-education and awareness campaigns, websites, coffee-table books, editorial material, and other designed media.
- **Installations and galleries** — Custom wall installations, gallery exhibits, conference booths, and displays using the company's portrait and narrative archive.
- **Special events and programming** — Employee engagement, lunch-and-learns, off-sites, lab tours, conferences, virtual events, awareness days, patient advisory boards, listening sessions, webinars, and externally led PFDD support.
- **The Tenacity of Hope** — A full-length documentary made with Cure CMD about the diverse experiences of people living with congenital muscular dystrophy, originally created for Cure CMD's 2022 patient-focused drug-development meeting with the FDA.
- **Story Archive** — An online collection of documentary shorts, portraits, and written stories featuring people and families across many rare conditions.

## Achievements

- Interviewed and photographed more than 600 families living with more than 80 rare conditions worldwide, according to the company.
- Created The Tenacity of Hope with Cure CMD for presentation at a 2022 patient-focused drug-development meeting with the FDA.
- Had work featured across websites, magazines, galleries, permanent installations, conference environments, and Times Square billboards, according to the company.
- Presented Story as Medicine with Beyond the Diagnosis in the Mission Moment Art Gallery at BIO 2025.
- The Tenacity of Hope was selected for the Rare Reels screening during Rare Disease Week 2025 in Washington, D.C.
- Built an interdisciplinary team spanning documentary film, photography, advocacy, writing, anthropology, design, account direction, and lived rare-disease experience.

## Latest updates

- **2024-12** — Published Maddie's story about self-acceptance, disability justice, gender identity, self-care, and life with Pompe disease in the online archive.
- **2025-02** — The Tenacity of Hope screened at Rare Reels during Rare Disease Week in Washington, D.C., followed by a panel featuring director Levi Gershkowitz.
- **2025-06** — Living in the Light and Beyond the Diagnosis presented an abridged Story as Medicine photography and multimedia exhibit at BIO 2025 in Boston.
- **2026-03** — The company's website continued to publish an expanded team, global story archive, and custom advocacy, media, installation, and events services.

## Links

- Website: https://www.frompatienttoperson.com
- LinkedIn: https://www.linkedin.com/company/living-in-the-light-llc
- Twitter/X: https://twitter.com/stayhomeforrare
- Instagram: https://www.instagram.com/frompatienttoperson/
- Facebook: https://www.facebook.com/livinginthelightofrarediseases

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Profile page: https://yespress.io/living-in-the-light
Published by YesPress — https://yespress.io
Last updated: 2026-09-20